Learning the Scary Facts About Alzheimer’s Disease
If you’re a baby boomer, the chance is 50/50 that you’ll be dealing with a parent with dementia, if you haven’t already. Ron Whitaker found himself in that position, and decided he’d better learn more. Much more.
I’d like to take you on a journey. It’s one I took several years ago, and though it wasn’t pleasant, it was educational.
It’s a journey into the mind. Not mine, but my father’s.
At the time it started, I was living in a different state than my parents. They were in California, where I grew up; I was in Utah.
My mother called me one day to say that my father had been hospitalized. And dementia was setting in. We were told it might have been the result of medications but no matter what the cause, the result was a sad permanent change in my father.
At the time, I was clueless about the disease. I had only heard of it, but hadn’t had any personal experience with it. That was about to change.
My father’s health continued to decline, and in 2005 I moved back to California to help with my parents. My mother was getting to a point where she couldn’t care for my father on her own.
That’s when I got a first-hand education on the effects of dementia.
Soon after moving back, my parents and I began a weekly family tradition of traveling to a neighboring town on Saturday mornings where we would first go to Walmart and my mother would do her weekly shopping, then we would head over to a Hometown Buffet for breakfast. (Great breakfasts there, by the way!)
On one particular Saturday morning, I was driving, my father was in the passenger seat, my mother in the back.
had just pulled out of the driveway when my father exclaimed “I thought Ron was coming with us!”
With raised eyebrows I replied, “I’m right here.”
“Oh,” my father replied.
That was my first run-in with Dementia Dad.
During that early period after I first moved back, I was working full-time during the week.
I slept in a mobile home that still sits next to my parents’ home. It had once been occupied by my grandparents before their passing.
Late one night I was almost asleep when my cell phone rang. I jumped up knowing it was my parents, since I had assigned them a specific ringtone.
I could hear the panic in my mother’s voice as she told me to get over to the main house quickly.
I hated those moments. Not because I had been awakened, or needed to help, but the heart-pounding, stressful, please-don’t-be-anything-serious quick prayer you repeat during those times.
I got over to my parents’ house, only to find my father holding a loaded pistol in his hand, and waving it around.
Another dementia moment. This one pretty serious!
It was also one of those surreal moments that you only expect to happen in a movie or a television drama series. But this was real.
After a few moments of talking calmly to my father, repeating that it was late and he needed to get to bed, I finally had to (carefully!) wrangle the gun out of his hand. And it wasn’t so easy, at that.
Thankfully, catastrophe was averted… and I hid the gun!
A while after that incident, my mother was speaking to someone about my father and sadly explained that when a loved one suffers from dementia or Alzheimer’s, and they’re just not thinking clearly, you simply can’t enjoy them anymore because they’re simply not themselves.
Sad. But true. It’s like another person in the house. Not the one you grew up with.
After my personal experience with dementia, and thanks to a local workshop I attended last summer, I feel somewhat more educated on the topic. Definitely not an expert, but more informed.
For example, I had been confused about the difference between dementia and Alzheimer’s.
Though I had heard of them both, the difference never really hit home until my father developed it. There’s no better teacher than experience.
Many facts about Alzheimer’s are alarming. One of them is that nearly half of those over 85 years of age in the U.S. have Alzheimer’s.
Being a visual designer, I took some of the information found in the Alzheimer’s Association’s 2012 Alzheimer’s Disease Facts and Figures pamphlet, along with the information found in an article on Alzheimer’s, to create an infographic.
The facts are eye-opening! But if you’re a baby boomer, there’s half a chance you’ll be dealing with a parent who has it. And you’d better understand more than you probably understand today.
Category: Health & Wellness











Dementia and Alzheimer’s are very scary diseases. My Dad has vascular dementia and his behavior is unpredictable. It’s very important to get educated. The Alzheimer’s Association is a great resource. They have a good YouTube video, which is similar to your graphic. Thanks for the informative post.
Lorie:
I’m glad you found the infographic helpful.
Like so many things in life, you have to EXPERIENCE it (dementia and Alzheimer’s) to KNOW it. Talking about it just isn’t the same.
Sounds like you’re living it as well right now with your father.
I hope things go well.
During this trying time, you might want to take up “journaling.” Here’s an interview I did with speaker and author Lynn Goodwin (read about it here: http://www.boomerbazaar.com/blog/relieving-caregiver-stress-through-journaling-a-caregiver-workshop/). Lynn also offers an online course as well.
Good wishes to you and your family!
I felt deeply for you when you talked about noticing permanent changes in your dad and began the journey into your father’s mind. I’ve been there, too, so I know how dealing with a parent (in my case, it was my mother) with Alzheimer’s disease can be likened to a living nightmare. Your story and the information you provided has prompted me to put together a story to submit to Boomer Café on how I was moved to help other people after caring for my mother for three years before Alzheimer’s took her completely away by death. Thank you, Ron, for your good work.
Lynn:
Thank you for your kind words!
It is a sad time when you see your parents’ health begin to deteriorate and notice that they are unable to do the things they were once able to do with ease.
I’m just grateful I was able to be there to help them during their final years. I wouldn’t trade those years for anything!
Thank you for this vivid yet measured article about this terrible disease in which we lose our loved ones long before they die. I’m so sorry your family has been affected by it.
One more less-than-fun fact for your infographic: now that people with Down’s Syndrome are often living until around 60 rather than dying much younger, they are falling victim to early-onset dementia much more frequently than those of us who do not have Down’s. After all the work that so many have done to support people with Down’s to live full and independent lives, this seems one of life’s crueller ironies. (My brother died five years ago at 50 having suffered from Alzheimer’s for around four years.)
You can read more here: http://www.alz.org/dementia/down-syndrome-alzheimers-symptoms.asp
Tess:
I wasn’t aware of that fact regarding those with Down’s.
And you’re right, it is one of life’s crueler ironies.
Thank you for your comment!
I think this is the single one disease that affects the aged that terrifies me most – whether you call it Alzheimer’s or Dementia, it comes to the same awful conclusion: a total change in the person you love to the extent that it’s no longer the same person.I can’t think of anything worse and the way you’ve handled it shows great courage: to overcome your own fears, to help your poor mother.
Thanks for sharing your story, I’m sure it’s a lot of help to many people who may not feel like they want to comment largely because of the pain they are going through. Oh, and the infographic is truly well done!
Claude:
Thank you for your comment.
It was a very sad and confusing time for me, but especially for my mother. She would tell me things that my father would say or do and it just didn’t “sound” like him. But then, when they develop the illness, they’re NOT themselves any longer, which is tragic.
And, thank you, I’m glad the infographic was helpful.